At $25k per month per person that’s $30,000,000,000 per year for the 100,000 folks with CF. As a T1D I get it, but there is no way of escaping the other impactful uses of that sum.
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How much of that $30b is true cost (R&D/manufacturing/distribution) versus cost + profit? Cuz I'm guessing a lot of it is profit.
The actual sum of money required to keep those 100k people alive is likely much much much smaller.
It’s basically a posterior grant, a price paid out to the company who invented the drug.
Eventually the patent will expire and the drug will become cheap for society.
In the meantime, the high payout will encourage the development of treatments for other rare diseases
Are you arguing for eugenics?